Comments on A Little Desert Apartment: Another Diagnosis

Oh how frustrating. My background is in neuropsyc...

2011-06-11T10:29:10.943-07:00

Oh how frustrating. My background is in neuropsychology. So much can go wrong so easily with the brain. People don't realize what can happen in a split second. She's an absolutely beautiful little girl! Sounds like you're a very caring parent too :-)

Stopping by to say thanks for entering my green giveaway!

@Al- anybody the National Center is welcome to red...

2011-06-05T20:27:24.429-07:00

@Al- anybody the National Center is welcome to red carpet treatment on my blog :). I think it's important to inform people what we go through, it doesn't end at discharge from the hospital or when court is over... it's forever. Thank you for all your work at the National Center!

Renee- Hang in there. A lot of work and patience come a long way. I have to say, thankfully, no doctor has ever given Emma a prognosis. No, that's not true, at the time of injury and the first surgery her prognosis was very grim and once she woke up from her coma, her doctors focused on the here and now and getting as healthy as possible. I am very lucky to have so many amazing physicians involved in her care. Oh and don't you worry, you WILL be getting reports of kaileb's shenanigans soon enough! LOL

@Ryan, Thank YOU for reading my blog and being open to taking in the information I share. It means a lot to me that a small peak into our lives has opened up another world for another person. I know you are huge on sticking up for those who are targeted and that makes you a compassionate and caring person, in my eyes, and I am glad that you are aware of what my daughter goes through. Thanks for being an active follower :D

I just wanted to thank you for all the posts and i...

2011-05-25T11:34:57.910-07:00

I just wanted to thank you for all the posts and information you put out there for us to read and watch. I'm going to be honest and say I never knew about this condition until I started reading your blog.

You and your daughter have openened my eyes and I thank you for that.

Jamie your outstanding and Emma is simply amazing....

2011-05-25T11:17:58.873-07:00

Jamie your outstanding and Emma is simply amazing. The Dr.s I am sure had a much worse and grim outlook for Emma, and she has exceeded there expectations, as I know someday Kaileb will. Its weird to read your post and see the good in what has been written maybe cause we are so far behind in the process non the less it is captivating and uplifting for me and me personally to read about all of Emma's accomplishments, her personality, her behaviors (lol) and choice words :) she keeps me smiling and going on through your words. So Thank you. Our kids are amazing and I can at this point only hope that Kailebs news is as good as Emma's news. And that I can some how help someone else like you and Emma have helped me and my battle to make Kaileb be the best little dude he can be.

Jamie, I've been the information and research...

2011-05-24T15:36:48.382-07:00

Jamie,

I've been the information and research specialist at the National Center on Shaken Baby Syndrome for over thirteen years and came across your blog while watching for SBS related posts online.

I think many people don't realize all of the challenges faced by survivors of shaken baby syndrome.

Thank you for sharing a glimpse into your life with Emma.